Table 2 Quotes related to participants’ perceptions of the patients’ right to choose to know or not to know about genomic sequencing SFs

Quote 1: “It is more a question about the other person’s willingness to know; it comes from the patient’s point of view because it depends on his point of view. They are not going to force him (the patient) to tell him directly. If he doesn’t feel like knowing, it’s his body, and it’s him who decides if he wants to know or not what is going on or not, whether he wants to worry or not. That’s the person’s choice.” Male from the general Quebec City population

Quote 2: “No, I do think that the person should be able to choose beforehand. If it’s a diagnosis on which she can act, maybe she will be more inclined to want to know it. If it’s a diagnosis on which she’s powerless, I don’t see why I would impose it on her. If she decides that she doesn’t want to know, that’s her choice. But, I would respect her choice.” Montreal female cancer survivor

Quote 3: “It’s good to have the choice. Also, if we have kids, to know…for the kids, the risks that they may incur in the future. It is not only about the patient’s responsibility (towards herself); there is also the responsibility towards her relatives.” Montreal female cancer survivor

Quote 4: “I was really surprised because to me it’s really the right to information so I even thought that from a legal point of view, it was like illegal not to inform me of the results… but I personally would like to know everything” Woman from the Quebec City general population